What HOSPICE Is....
...support to the primary caregiver.
...numerous federally mandated services that are owned by individual companies, non-profit organizations, etc.
What HOSPICE Is Not...
...a primary caregiver.
...one big organization that is owned, operated, and/or managed by one entity.
What HOSPICE Does...
...educate the caregiver on what to expect throughout the patient's particular disease process.
...manage the patient's medications which are related to the Hospice diagnosis.
...teach the caregiver about what the patient's Hospice medications are for and how they are to be given.
...provide 24-hour nurse availability to : answer questions, assess patient to identify if new medications or treatments are needed, educate and reassure caregivers regarding new medications, new treatments, or new symptoms, obtain Hospice medications if needed immediately to relieve pain or manage symptoms, pronounce at time of death.
...arrange and provide for up to 5 days of respite care when needed to allow the primary caregiver a time of respite.
...provide continuous care for a brief period of time when assessment indicates that nursing care is needed to support the primary caregiver in managing a crisis situation related to the patient's terminal diagnosis.
...request that patient and/or patient's caregiver call Hospice before calling 911 to assess if symptoms are a normal part of disease progression and/or could be managed at patient's home.
...provide a brief, general in-patient hospital stay ONLY when ordered by the patient's hospice physician when pain and/or symptoms can not be controlled or managed in the home setting.
...supply equipment from a Hospice formulary when related to the hospice diagnosis and deemed necessary in order to manage the patient's care in a home/facility setting (hospital bed, over-the-bed table, bedside commode, shower chair, walker, wheelchair, trapeze, briefs, linen protectors, skin barrier creams, etc.).
...teach nursing facility staff or paid caregivers who are assuming the role of the patient's primary caregiver regarding disease process, medications administration, symptom management, etc.
What HOSPICE Does Not Do...
...remove the responsibility of the caregiver to learn about the patient's disease process.
...manage ALL of the patient's medications WHETHER OR NOT they are related to the Hospice diagnosis.
...replace the caregiver's role in making sure that the patient's Hospice medications are administered correctly.
...provide 24-hour nurse availability to: stay with patient on an ongoing basis, assuming the role of the primary caregiver.
...provide residence, temporary or ongoing, for patients who do not have a primary caregiver.
...provide continuous care in an effort to administer curative treatment.
...continue to provide services for patients who choose to call 911 in an effort to pursue aggressive, curative treatment.
...provide hospitalization when the patient's pain and/or symptoms could be managed in a home or facility setting with an appropriate caregiver.
...provide supplies that are not related to the patient's Hospice diagnosis.
...consider any companion, sitter, or any ongoing arrangement of sitters or companions who cannot provide 24-hour care, medication administration, treatment administration, and ADL assistance as an acceptable primary caregiver.